Pros

I am on round 2 of 6 chemo treatments. I am less terrified the second time around. But new things come up. There is so much to process at such a rapid rate.

Kayla and I are nearing our one year wedding anniversary. The idea of qualifying our relationship in such a way is what inspired me to start this blog. We were rookies when we met. We had under our belts failed attempts at intimacy and failed relationships, a poor standard of communication and little to no example of how it could be done. But we found in each other the need to prevail at this. We found a desire to learn, to grow, to bend and to fight full heartedly for something that was separate from ourselves. Commitment. Marriage. Fidelity. Family.

And here we are. Our marriage is almost a year old. And we have my cancer to contend with. And sometimes I feel like all I think about is the cancer. I think what happens is that we are both so busy kicking ass at kicking cancer in the ass that we forget to check in, to connect. We carry on with our lives, convincing ourselves and each other and the world around us that everything is going to be fine.

Only a few short months ago I felt so youthful. I was visualizing my pregnancy. The youthful thirty something with the baby bump and the glowing skin, practicing yoga with my long thick hair twisted into a bun, pedicured feet, contented smile...Kayla building furniture for the nursery, tool belt and tight T-shirt clad...

Now, I notice myself in conversations, reminding anyone who will listen that even though my last chemo treatment is in April, that is not the end of this little detour. I still have a year of herceptin, possibly five years of hormone blockers (or not), check ups, scans, loss of fertility, plastic tits, hot flashes, ovarian cancer screenings, the list goes on... Plus, I have a strong suspicion based on the way we survivors cling to one another in online forums, long after treatment is done, that this is a ride I will forever be on. I think I'm nervous that everyone without cancer's expectation of me, that my wife's expectation of me, is that after chemo, then after I get my new boobs, that everything is going to go back to "normal". But, what will I have lost? Can I even fathom that now? During treatment there is little room for mourning and loss. It is all I can do to keep my spirits high enough to fight. And I manage to be strong, to be positive, to be fearless. But in this trial there are hundreds of little ropes, and eventually I reach the end of each one...and the fears come tumbling out.

But she's scared too. And when we finally stop flexing and curtsying for the world for a moment, and talk to each other, I realize this. There are moments like these that I believe are born of our love, commitment and our determination to see each other through life, regardless of what that life looks like. So when I blubber into her shirt that I'm scared of her expectations, that I can't be sure that I have resolved myself the desire to carry our child, that I'm afraid I may still break down when this is over, and that I may need help, that I find it still so fucking difficult to relate to anyone without cancer, she doesn't seem disappointed. She reminds me that besides me, she is the person carrying the heaviest load from this. And that when this is all over she may need to break down too. And there are no expectations. Except for the one. That each of us would maintain the need and desire to be married with one another. I think you could call us pros.

And with cancer comes...

One thing that this diagnosis has taught me is how limited our control is over life's momentum. Spontaneity has never been much of a thing for me. I like to plan things. I thrive on routine and I bask in an orderly and well arranged nest. I am always on time. I am not a fan of clutter. But, I am learning to operate under a new system of control. I am learning as I go what works for my body during treatment, how much I need to rest, how much I need to meditate, how much social interaction I need, how much I can handle and how far I can walk or ride my stationary excercise bike before I am winded and need to take a break. I am learning my body's new boundaries, and in learning them I am learning to accept and love it as it is. I have a body in transition. I literally live in a physical body of reconstruction. We all do. My transition is just more tactile than some. And it wasn't all voluntary. A large part of my personal spiritual practice is maintaining a strong mind/body connection. When I have felt the least alive is when I have suffered a drift of connection to my body. I can't tell you how many times I have gone to see my therapist in utter mental disarray, convinced I should be immediately medicated, to be gently reminded to sit and breathe, ask myself where in my body the pain or confusion is felt, and go there, breathe into it...sit in it...and possibly move with it. As a child I learned to dance and losing myself to the rhythm and the counts and the music and the repetition of rehearsal was therapy for me. Closing my eyes and chanting in a room of yogis is therapy for me too. So a common theme in my reckoning with breast cancer is working to overcome the challenges of a rapidly changing, unpredictable body, a body that I felt had somehow misled me, or turned against me. I thought I was on such intimate terms...but... I have to make a daily practice of trying to connect spiritually to a higher healing power, trying to connect with the depth of healing powers in the well of my deepest self, when at times, especially in the beginning of diagnosis, I couldn't look at myself in the mirror. I couldn't look myself in the eye. I couldn't take my shirt off in front of my wife. I couldn't fix my hair. I struggled for a grasp of how connection to this body could be possible at the same time that I was learning at a rapid rate what was about to transpire for me physically. I wrestled with avoidance but avoiding conflict of any kind is not conducive to my well being. So I started with confrontation. I needed to have a log of what was happening to me. If I log the pain, the suffering, breathe and move through it, like grinding a sore tooth until I can taste the blood, I will eventually find sense in the path that I chose. Eventually. Kayla is helping me log the physical transformation through photography. The images allow me to process what is happening in a new level. There have been moments of paralysis, moments of searing heartbreak. Then there are those sweet moments of peaceful surrender, when the stillness of the present pillows me with the realization that I am ALIVE, and I am finding an ease of grace through each phase of my physical appearance, navigating my way through this trial that tolls me from the inside out. There were many things that I have feared, many things that I desperately wanted to change, or feared I could never confront, that I am beginning to move through now. The change is inevitable. The ability to dig into and connect to the inevitability of it became more profound and more powerful under the knife of cancer.